We made it through our first 7 week summer holiday

At the end of June I worried how I was ever going to survive having Ayla home all summer. 7 weeks! I made a resolution that every week we would do at least one thing, or go one place, or see one new landmark. It was a bold statement, but a promise that I made to myself and to Ayla.

We actually made 11

1. The Kelpies - Helix Park 
2. Istanbul Palace in Edinburgh
3. Falkirk Wheel
4. Play & Chat at Plus Stirling
5. Butterfly Farm in Edinburgh
6. 5 sisters zoo in west lothian
7. Cockenzie House - Falco's secret garden restuarant
8. Rosslyn Chapel
9. Linda's new house in penicuik
10. Pittencrieff Park
11. Aberdour - silver sands beach

I am so very pleased that I managed to take her out and about. Some of these places I had never been to either. There are more photos of each of the locations, but i think they might be in my SLR.

 pittencrieff park peacocks

Rosslyn Chapel

 Drinking my cappuccino in Ocean Terminal

One of the Kelpies

oh dearie me....2015 is running away with us

I can hardly believe that it has been 6 months since I have posted.

May 2015 - a trip to Turkey to see Ayla's Turkish Granny.

We also got to paddle in the Aegean Sea

April - Ayla got to roll her boiled egg down the hill for Easter. She also wore lovely bunny ears

March - met Uncle Apo, comic relief at Rachel House and had first hot tub of the year after playing on the swing with her cousins

February - after hospital at the beginning of feb we had an evening meeting all of mum's cousins

January - bundled you up warm after spending after spending the 1st of 2015 and the next 2 weeks in hospital. Still at least you met Elsa and Olaf!

another little stay at hospital

Well I can't believe that my little fighter managed to get home after only 5 days in hospital.

Of course we are still on antibiotics and still doing chest physio, but we might consider nursery next week.

I'm hoping these little illnesses help to improve her immune system if nothing else.

2 halloween costumes

Well thank goodness that my Brother has kids, we had 2 costume opportunities for Ayla this Halloween. Thankfully my SIL brought a bag of old costumes for me to peruse.

We eventually settled on a spanish dancer costume for her nursery party and a ladybird outfit for the grand night itself!

I did decorate the house, but forgot to photograph it. Oh well, I'm sure I'll find some photos later that have bits of it on show.

Hope everyone has a good winter season

school uniform

It's an everyday occurrence for some, but it's something that we never thought we would see. So, I'd like to share: Ayla's first day in her school uniform. Ofcourse, after all the fun she's been having at nursery it will never be the same. But for that first day it was all spic and span!

wishing you a happy week whatever you are up to

She's 3

How did that happen? They told us 3 days, now we are 3 years.....

Well it's been a mix of trust in our child, bumbling blindly along and a healthy dose of prayers. That is what has got us to where we are now.

I'm not updating the blog as often as I would like. I was hoping for at least a monthly update, but you know how it goes with best laid plans and all....

July was a month of

• splashing in hot tubs
• my nephew trying to hypnotise Ayla into saying her first words LOL
• visiting friends and family
• lazing in paddling pools in the back garden

August was a month of

• rolling onto tummies
• brushing teeth (finally without gagging)
• visiting another family who are travelling this road with trisomy 18
• Garden parties with RNSO
• turning 3
• starting nursery

September so far: 

• school photo
• visit to the safari park
• baking cakes with classmates
• discovering the gigglebellies videos

quite frankly ayla is rocking being 3. She has developed a few new tricks, but more of that in another post. 

Less than a week

It's unheard of, but that is how long Little Miss A was in hospital. Monday to Friday. Of course, she is still very poorly with a bad virus and a chesty crackle and cough. At least we get to come home though.

It is always worrying when you are heading for admission. It's not so much going in, but where will she end up....that is my worry. This is the first time in over 2 years that we have not ended up in PICU.

As you can see, she is still on oxygen through the daytime, but at least she is a little brighter today. 

sending warm hugs to everyone xx