Tuesday, October 29, 2013

October so far

In October so far ....

  • Had a few days at Rachel House where Ayla got to meet birds of prey for the first time
  • We met our Superheros who climbed 10 peaks to raise money for Ayla
  • Had an overnight with her big cousin Mia
  • Getting ready for Halloween

I can't tell you what an amazing group this is. They have raised over £2.5k to help with Ayla's equipment. To give you an idea, a standing frame £2.5k, a portable oxygen generator £3.5k, a comfy support seat £600-£1200.....you get the idea. Some things are funded by NHS, but her bed for example has been in stores since the summer - we are still awaiting delivery and the standing frame was measured and quoted in July, but not ordered yet. I'll keep you updated on what we decide to order.

Monday, October 28, 2013

What happened to September?

In September....

  • We dealt with a snotty girl all month
  • We went to SOFT conference (if you click on the link it will take you to the newsletter)
  • Baba came to visit for a week
  • We went to help our friends celebrate their wedding anniversary with a BBQ

Ayla chilling out at the SOFT conference

Saturday, October 26, 2013

What happened to August?

Well, in August...

  • We had a great photo shoot of Little Miss A and mummy. Photos are in the post previous.
  • Ayla had her 2nd birthday. We had over 70 people come to visit. I am incredibly privileged to know so many caring and generous people. I kid you not when i say that i actually boxed up her entire wardrobe and replaced it with the presents that she received. Fashion parade photos here we come..
  • We took Ayla to get her peg changed to a mini button. That was the day after her birthday. That was done without anaesthetic, and it means that she won't need another operation if her new button gastrostomy needs to be changed, we can just whip it out and change over.