We had a really traumatic month. At the end of Feb we were in Yorkhill for emergency bowel surgery. We only came to realise just how serious the situation was when the surgeon came out after the operation to tell us that not only was it a success, but that we couldn't have waited until the morning for the surgery. Bearing in mind the surgery only started at 2am, it didn't take long for us to realise just how close to the edge we had come.
We didn't know if the surgery would have a detrimental effect on her because of her Edwards Syndrome. Taking the decision to operate at 11pm was difficult, but thankfully we made the right decision for her.
We spent a week in Yorkhill, staying at Ronald McDonald house which was just across the road. It is a fantastic place, it made living in a big city that bit easier. So, if you ever use the drive through at McDonalds please think about dropping your change into their charity tray. Small change....big impact.
We have been home now for a fortnight. I'm glad to say she is doing well. The silver lining in all of this was that they put in a gastrostomy for me. That is a feeding tube directly into her stomache.
I can't believe the difference.....she no longer....
- needs oxygen 24/7
- has continual reflux
- vomits through her nose when she does actually vomit
- has lots of wind
- has difficulty taking enough milk
So, I guess that is why it took me a month to post the last entry....but what a month it was!