school uniform

It's an everyday occurrence for some, but it's something that we never thought we would see. So, I'd like to share: Ayla's first day in her school uniform. Ofcourse, after all the fun she's been having at nursery it will never be the same. But for that first day it was all spic and span!

wishing you a happy week whatever you are up to

She's 3

How did that happen? They told us 3 days, now we are 3 years.....

Well it's been a mix of trust in our child, bumbling blindly along and a healthy dose of prayers. That is what has got us to where we are now.

I'm not updating the blog as often as I would like. I was hoping for at least a monthly update, but you know how it goes with best laid plans and all....

July was a month of

• splashing in hot tubs
• my nephew trying to hypnotise Ayla into saying her first words LOL
• visiting friends and family
• lazing in paddling pools in the back garden

August was a month of

• rolling onto tummies
• brushing teeth (finally without gagging)
• visiting another family who are travelling this road with trisomy 18
• Garden parties with RNSO
• turning 3
• starting nursery

September so far: 

• school photo
• visit to the safari park
• baking cakes with classmates
• discovering the gigglebellies videos

quite frankly ayla is rocking being 3. She has developed a few new tricks, but more of that in another post. 

Less than a week

It's unheard of, but that is how long Little Miss A was in hospital. Monday to Friday. Of course, she is still very poorly with a bad virus and a chesty crackle and cough. At least we get to come home though.

It is always worrying when you are heading for admission. It's not so much going in, but where will she end up....that is my worry. This is the first time in over 2 years that we have not ended up in PICU.

As you can see, she is still on oxygen through the daytime, but at least she is a little brighter today. 

sending warm hugs to everyone xx

WOYWW 261

This is my workdesk before I spent a couple of hours this afternoon tidying it. It has evidence of a few kits that I am trying to prepare. The hope is that it will make scrapbooking faster. Well that is the theory...

We were up at Rachel House for my birthday. And one of my envelopes contained very lovely ATCs from Jo and Annie. Thank you ladies.

I hope everyone enjoys their crafty week. If you feel like joining in the fun pop over to Julia's

loving sunny May

we have been loving this weather, but sunglasses are a must. Next month we'll try the swimsuit and paddling pool :-)

Annie, this one is just for you. kisses from Ayla xx

May and spring has sprung at last

To celebrate the sunshine today, our little miss sunshine got to wear her first pair of kiddie sunglasses out and about. It took us so long to buy any because part of her condition means that her ears are lower set than most kids. I honestly didn't know if they would stay on her nose, or if she would keep them on her nose.

After the success of the first pair I thought we should get a couple of pairs...for the car, the handbag, the buggy. You know how it goes, just when you need a pair out and about you realise that they are propping up a sunhat on the kitchen windowsill.

We have spent a few days in the garden so far. Easter weekend was great. We are obviously hoping for more. Today was a bonus, until the rain started and spoiled our fun.

We have been spending one hour a week at nursery to transition in before the summer holidays. It has been very interesting for both Ayla and mum... I am so glad that Ayla is not shy with strangers, it makes for a much more relaxed nursery experience.

April Showers

We managed to get out a bit more in April. We got Ayla a cute little rain jacket with daisies on it and the cutest pair of sunglasses. Hello Kitty, shaped like daisies. Ayla thought she was the bees knees when we put them on her. I was surprised, I'd expected her to try to shake them off but instead we got the cutest little crinkly nosed smile. So like a normal toddler's reaction to getting to put on sunglasses, but somehow out of the ordinary for Ayla.

We got good news about her nursery placement for August. She will be going to a special needs school for nursery. I am thrilled. I can't wait to see her progress.

I'm getting a little bit more scrapbooking done just now during her naps. I'm trying to finish off all of my works-in-progress. I have many, so even getting some finished and into albums is a good feeling.